The Specialist Medical Resources Foundation is a not-for-profit, community driven, charity for the Riverina. Our goal is to 'bridge the gap' for families, children, adults and organisations financially through providing non-government funded medical equipment, medical aids and assisting families cover a range of medical expenses.
The Specialist Medical Resources Foundation need the community's support to fulfil the many needs of those in need living across the Riverina. Every donation, no matter how big or small will help us make a significant difference to the health and well being of those needing specialist medical care in our community.
Mia's Big Adventure
The Specialist Medical Resources Foundation are proud to be supporting Mia's Big Adventure.
A Go Fund Me page has been set up to help raise much needed funds. Head on over to https://www.gofundme.com/miasbigadventure if you want to donate, or have a look at the facebook page https://www.facebook.com/pg/miaslittlelegbigadventure/about/?ref=page_internal to see Mia's fundraising journey.
Some information from Mia and her family:
Mia's Little Leg, Big Adventure was set up to keep her friends, family and the wider community up to date on Mia and her family's journey with CFD (Congenital Femoral Deficiency). It is a page where they share the highs and lows of their big adventure with CFD and also raise awareness of the condition.
In Mia's case, CFD means that she was born with a very small femur in her left leg and a severely underdeveloped hip, making it significantly shorter than her right one.
Mia's family, with the help of the Specialist Medical Resources Foundation, will be fundraising for Mia to get her the best possible treatment available.
"Our journey with CFD began at 19 weeks when we went in for our routing anomaly scan. We went in with not a care in the world after being told at 12 weeks that everything looked perfect. That all soon changed when we were told that there was a serious problem with our baby. What followed was a long month of tears, research and more tears. We were referred to specialists who confirmed that our baby girl indeed had a very small femur measuring a teeny tiny 0.7cm at that stage. We were told that they doubted it would grow, and that amputation would be our most likely option and handed a limbs for life brochure adn referred onto a othopaedic surgeon. In this time I had already diagnosed Mia with CFD through my hours and hours of research and emailing surgeons across the globe. By the time we got to the surgeon, it was no surprise when he told us it was CFD. He told us to continue the scans and see where we were at once she was born. So we continued with scans every 4-5 weeks and each time her iny bone grew (those sepcialists were proven wrong). Becuase of all the frantic research we did, seeing her little leg at birth was heartbreaking but not a shock, our little girl was perfcect in every other way! CFD is said to occur from 1 in 50,000 births to 1 in 200,000 births, depending on the severity as there are varying types. Mia's type of CFD however has been diagnose as Paley type 3A, with severe hip issues also which is on the more severe end of the condition, pushing her type closer to the 1 in 1,000,000. There are certainly surgeries that are unfortunately not offered here in Australia at this stage and we want only the best for her which means raising money to get her the best. The treatment along costs hundreds of thousands of dollars plus we have to travel and stay in America for a few months."